Hi, this term we had talked about love, so I thinck this new is so interesting because is absolutely related with this topic. This new, appart of moving me, because it's a relly big shame the problem that this girl has, make me thinck about love, and asking myself what is the role genetic has in love.
This new it's about a little girl with a rare genetic disorder that makes to the three-year-old girl unable to accept love. Their familiars say that she responds to affection only with aggression.
The doctors say taht she was born without the chromosome 22, and this Syndrome, called Phelan-McDermid Syndrome affects around 130 people in the UK and only 1,500 worldwide, affects speech, mobility and cognitive development.
“There's a lot of research linked with autism that's going on in in the UK and overseas in the US.”
Although trapped in her little body, Melody does show moments of warmth.
“She came over and she sat next to me and I just thought, ‘Have I
done something, why do I deserve this?' and she passed me a paper and a
pen to draw hrt a picture, it was brilliant, it was the best thing, the
best affection I’ve ever had from her.”
Rebecca, the mother of this girla, says every day spent with her daughter is a gift and they've
learned how to show love in their own special way. Rebecca's sharing her
story to raise awareness, but she's also appealing for help from medical experts, so she can understand more about this rare disease.
Source: www.ondemandnews.com
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